Find out more about our work and how your money makes a real difference
Find out more about our work and how your money makes a real difference

Funding in Action

We raise funds to support individuals and families affected by genetic disorders.

There are around 6,000 life-altering genetic disorders.

Some genetic disorders are apparent at birth while others are diagnosed at different stages throughout childhood, adolescence and sometimes into adulthood, having a devastating impact on individuals and their families.

The Jeans for Genes campaign raises awareness of the daily challenges faced by those living with a genetic disorder and raises money to fund projects that make a tangible difference to the lives of those affected.

Most importantly, the campaign:

brings together the genetic disorder community in order to make a loud noise about the issues that matter to them,

shines a light on the organisations that work tirelessly to improve the lives of affected individuals; and

celebrates the achievements of those living with a genetic disorder.

Please take a look below to learn more about the lasting impact your Jeans for Genes donations make.

How your money helps

Skye has Rett syndrome that is robbing her of her ability to walk, feed herself or even speak. Money from Jeans for Genes Day enabled her special school to buy an eye-gaze machine that allows her to communicate with others.

Living with a genetic disorder

Tom has Cockayne syndrome, a rare premature ageing condition. In this film, his sister Ellie explains what life is like for Tom.