Some genetic conditions are apparent at birth whilst others are diagnosed at different stages throughout childhood, adolescence and sometimes into adulthood, having a profound and lasting impact on individuals and their families.
Our ambition is that every individual, and their families, can access the right support at times when it’s needed most. By taking part in Jeans for Genes week, we can all work together to make this ambition a reality.
As a result of your incredible fundraising, we support and provide vital funding to our charity partners through our grants programmes and aim to ensure that your donations are put to work in this way to have the most effective impact . This is more than just a week as the impact can be felt all year round.
2021 Jeans for Genes Grant Charities
Because of your Jeans for Genes donations, we were able to provide unrestricted funding to 18 charities providing vital support to those living with a genetic condition in the UK
2020 Jeans for Genes Grant Charities
This year, because of your Jeans for Genes donations, we were able to fund 23 charities providing vital support to those living with a genetic condition in the UK during the coronavirus pandemic.
2019 Jeans for Genes Grant Charities
In 2019, because of your Jeans for Genes donations, we were able to support 22 charity partners with funding to run crucial projects improving the lives of individuals and families living with a genetic condition
Our funding partner, Annabelle’s Challenge, aims to promote awareness and medical research into the rare, life-threatening and incurable genetic condition Vascular Ehlers-Danlos Syndrome (vEDS).
Our funding partner, DBA UK provides support and information for those with the rare genetic blood condition Diamond Blackfan Anaemia (DBA), and their families.
Duchenne Family Support Group (DFSG)
Our funding partner, the Duchenne Family Support Group (DFSG) supports people with Duchenne Muscular Dystrophy and their families. They provide a free helpline, information, quarterly newsletters, days out and subsidised holidays.
Our funding partner, The Myotubular Trust supports and helps families at various stages of living with the rare conditions myotubular and centronuclear myopathy.
Trigger warning: this article contains a parent’s personal account of child loss.
“We couldn’t call our baby anything other than Hope,” Beth, from Aldershot, Hampshire
Our funding partner, SOFT UK provides support and information for families of children with the genetic conditions Trisomy 13 (Patau’s syndrome) and Trisomy 18 (Edwards’ syndrome).
The Phelan-McDermid Syndrome Foundation UK (PMSF UK)
Our funding partner, PMSF UK provides a supportive, inclusive community for families affected by Phelan-McDermid Syndrome (PMS), a genetic condition which affects speech, cognitive development and mobility.
Specialist disability equipment
Over the last 14 years, Newlife has received over £58,000 from funds raised on Jeans for Genes Day to help them provide specialist disability equipment to children living with a genetic condition.
A multi-sensory wonderland
Monies raised on Jeans for Genes Day funded Oily Cart, a theatre company, to visit special schools with a production that involved tactile and multi-sensory activities.
Summer fun for young carers
Jeans for Genes Day funded a summer camp for the Scottish Huntington's Association for young people affected by Huntington's disease.
Pioneering Medical Research
Rhys Evans hit the headlines in 2002 as the ‘bubble baby’, a child with no immune system, whose life was saved by pioneering gene therapy partly funded by monies raised through Jeans for Genes. Rhys is now 19 and has been able to live a full and active life.