We raise funds to support individuals and families affected by genetic conditions.
There are around 6,000 life-altering genetic conditions.
Some genetic conditions are apparent at birth while others are diagnosed at different stages throughout childhood, adolescence and sometimes into adulthood, having a devastating impact on individuals and their families.
The Jeans for Genes campaign raises awareness of the daily challenges faced by those living with a genetic condition and raises money to fund projects that make a tangible difference to the lives of those affected.
Most importantly, the campaign:
brings together the genetic condition community in order to make a loud noise about the issues that matter to them,
shines a light on the organisations that work tirelessly to improve the lives of affected individuals; and
celebrates the achievements of those living with a genetic condition.
Please take a look below to learn more about the lasting impact your Jeans for Genes donations make.
A multi-sensory wonderland
Monies raised on Jeans for Genes Day funded Oily Cart, a theatre company, to visit special schools with a production that involved tactile and multi-sensory activities.
Specialist nursing care
Helen is the Clinical Nurse Specialist for chronic granulomatous disorder at Great Ormond Street Hospital. Her role is funded through monies raised on Jeans for Genes Day.
Summer fun for young carers
Jeans for Genes Day funded a summer camp for the Scottish Huntington's Association for young people affected by Huntington's disease.
Pioneering Medical Research
Rhys Evans hit the headlines in 2002 as the ‘bubble baby’, a child with no immune system, whose life was saved by pioneering gene therapy partly funded by monies raised through Jeans for Genes. Rhys is now 19 and has been able to live a full and active life.
New vital patient groups
Seven year old Josh has Norrie disease, a genetic disorder that has caused him to be blind from birth as well as him currently losing his hearing
2020 Jeans for Genes Grant Charities
This year, because of your Jeans for Genes donations, we were able to fund 23 charities providing vital support to those living with a genetic disorder in the UK during the coronavirus pandemic.