Henry's story Diamond Blackfan Anaemia Jeans for Genes

Henry's story

Five year old Henry was born with the rare genetic condition, Diamond Blackfan Anaemia. His condition meant that he was unable to make his own red blood cells, which carry oxygen around the body and so he required blood transfusions every 3 – 4 weeks to keep him alive.

In 2019 Henry’s life changed dramatically when a stem cell match was found, and he underwent a bone marrow transplant to replace his faulty bone marrow with that of an anonymous donor. Henry has had to spend over a year in isolation whilst undergoing the transplant, either in hospital or at home. Whilst Henry will still have to be careful, he can finally start living a more ‘normal’ life – building sandcastles and playing with his baby brother.