Natasha’s story Kniest syndrome - Jeans for Genes

Natasha’s story

Natasha has Kniest syndrome which affects only around 100 people worldwide. Kniest syndrome causes those affected to have a short trunk, arms and legs, as well as hearing and vision problems. Combined these conditions affect mobility.

For the first six months of her life Natasha was fed through a nasogastric tube but soon thrived. Her mobility was delayed and she now uses a powered wheelchair at school as when out of it she falls easily.

Little People UK which will received a grant from Jeans for Genes to fund a residential weekend for children with growth disorders to enjoy different activities, including a high ropes course, bouldering and buggy riding.